3 Failed Adventures.. I can't do this at the moment

Ahh, this is not a video that I wanted to make!

Back in the spring I started becoming unusually breathless, having issues with my heartrate and experiencing chest pain and exhaustion. As the months passed, I gradually became unable to do the things that I love, and I'm now at a point where I'm struggling with many aspects of day-to-day life. 

In May I was treated for costochondritis, which didn't work. In June I was told that a cyst in my spine was likely causing my issues. But actually, it turns out that I have a chest wall deformity called pectus excavatum, which means that faulty costal cartilage is causing my sternum to sink down into my chest cavity. This had gone undiagnosed my whole adult life as it's been obscured by breast tissue, but has now become severe, and my sternum is now compressing my heart. I have a Haller Index of 6.5 (measured on CT at inhale) and currently have a squished right ventricle and atrium. I’m having further tests to try to figure out what's happened in there, and being referred on to a specialist cardiothoracic surgeon

I don't know what the future holds, but I want to be hopeful that this is a setback that I can eventually recover from

So this is my journey so far - 3 failed adventures and a lot of frustration. But there’s plenty of beauty in there too

To anyone who is struggling right now, big hugs, keep going! We'll get through this 💚

Music in this Video

Thank you to these amazing artists for producing such beautiful music - it is such an important part of my videos and a joy to help me tell my lil adventure stories..
 
Ocean Voyage – Adi Goldstein
Cold – Borrtex
Experience Sonder – Flint
Wanderlust Journey – Lumine Wave
Autumn Wind – Yehezkel Raz
Waves from the Past – Anna Dager
 
All music used under license
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Pectus Support & Resources

Pectus Matters Charity Website

NHS Severe Pectus Care Pathway

Reddit / Pectus Excavatum

Facebook / Pectus Support UK